Friday morning we started the day by heading down to the French Quarter to Cafe Du Monde for beignets. It was a bit of a disaster, as we had initially planned to walk (about 20 minutes), but we had made it less than 2 blocks from our house when it started pouring. Jess ended up running back to the house for the car, while Lexi and I waited under an overhang. Naturally, by the time she made it back to us with the car, it had stopped raining. Welcome to New Orleans.
While the beignets definitely lived up to their reputation, the restaurant itself is hot, crowded, and LOUD. Despite all that, when the woman at the table next to us got up to leave, Lexi actually made eye contact with her, and smiled when she said hello!! I may or may not have started crying in the restaurant. 😉
We scheduled Lexi’s second dive for 1:30-2:30 because she eats lunch at 3. That time has worked so much better. She tolerated the chamber really well, and enjoyed a solid 45 minutes just laying down and cuddling with Mama, listening to Food Network (there’s a tv right outside the chamber, and a speaker in the chamber. You can ask them to put it on whatever channel you want).
After the dive, we went back to my mom’s hotel and went swimming. While fun, this ended up being a HUGE mistake. Lexi woke up throwing up around 2am Friday night, and my right arm was hurting a lot. By the time we were up for the day on Saturday, I could barely move my arm at all without excruciating pain. For a while, I was scared I had damaged it dealing with Lexi’s puke-pocalypse. It turns out it was just sore from over-using it swimming.
This weekend we intended to go to the French Quarter Saturday, and the aquarium Sunday. But between my shoulder and being exhausted from being up with Lexi, we ended up spending Saturday cleaning up around the house, doing laundry, and shopping. Sunday Jess was throwing up, so I’m thinking Lexi must have had a stomach bug, and gave it to Jess. Unfortunately, this effectively ruined our weekend plans.
Monday’s dive went really well. She’s really tolerating everything but the oxygen mask beautifully, and we’re getting into a rhythm. The best part about our new dive time is that it’s right over nap time, so she’s pretty relaxed and sleepy in the chamber.
Unfortunately, Lexi’s tummy wasn’t feeling well Tuesday, and we had to skip her dive. Jess won the Supermom of the week award though, when Lexi started gagging, and Jess scooped her up, ran into the kitchen, and got her over the sink before she threw up. No mess!
Wednesday, she was badly constipated, and didn’t eat at all before the chamber, so she fussed during the dive. Of course, immediately after putting her in her car seat after, she fell asleep. We finally had to wake her up around 3:30 to eat, but she missed breakfast entirely.
Today’s dive went well, except that she twitched almost the whole time. The oxygen mask is really stressing her, so I’m going to talk to the doctor as soon as possible to find out why we need it, and if we can just pump the oxygen directly into the chamber. The good news is that she doesn’t have to wear the mask directly on her face, but this means I have to hold it near her face for the entire 45 minutes, so we can’t really do anything fun.
Now on to what you really want to know: what Lexi is doing now.
In the last 5 days, Lexi has started:
— making eye contact with strangers
— looking around unfamiliar places to try to figure out where she is
— holding her head and trunk way more steady
— clearer verbalizations
— holding conversations, including back-talking (see below)
— spontaneously playing with toys
— smiling/laughing while playing with toys
— playing with her squeaky monkey, including tracking it after it’s been moved
— able to use restaurant high chairs with minimal support
— smiling when you kiss her or tell her you love her
In other exciting news, the girl who started it all, Eden, has treatments at the same time as Lexi, so we’ve gotten to meet and talk to her mom, and even meet Eden. At some point, we hope to get a picture of Lexi and Eden together.
And your funny Lexi story of the week: many of you know that since April, Lexi has categorically refused to take a bottle from me. Tonight, we sat down on the couch together to discuss this. Here is our conversation:
me: you know, Lex, Mommy can not give you every single bottle you eat for the next 2 months.
Lexi: want to!
me: *attempts negotiating with stubborn toddler* What if you only take one bottle from me a week?
me: *attempts further negotiations* I continued trying to give her a bottle for another 5-10 minutes, before finally giving her back to Jess.
Lexi: I win!
me: No, Lexi, you don’t win. No one wins. Mommy is tired and wants a break from feeding you.
Lexi: want Mommy.
Stubborn toddler is stubborn, and very opinionated.
Pictures and videos coming tomorrow, as it’s currently 11:45 NOLA time (12:45 EST) and I’m tired.